Congenital Central Hypoventilation Syndrome
Find people with Congenital Central Hypoventilation Syndrome through the map. Connect with them and share experiences. Join the Congenital Central Hypoventilation Syndrome community.
May interest you
Congenital Central Hypoventilation Syndrome stories
Views: 641 Mar 1, 2016, 4:09 PM by Mateusz
i was born on Good Friday in April of 2000, 1 month early with a very low heart not being able to process a large amount of amniotic fluid. I remained in the NICU for a little over 3 months. My mutation number is 20/27. I have multi...
Views: 553 Jan 30, 2016, 6:01 AM by Karley
Hello there. In 2012, I got married to a man that was diagnosed at Birth with cchs. He also had a daughter that was diagnosed at Birth with cchs. I am both of their primary care person, outside of doctors of course. As of right now, I have 4 good nur...
Views: 516 Mar 17, 2016, 3:28 PM by Amanda
Son also has CCHS with associated Hirschsprungs.
Views: 491 Jan 30, 2016, 5:59 AM by Katie
Views: 237 Apr 19, 2018, 1:14 AM by Megan
Congenital Central Hypoventilation Syndrome forum
There are not questions yet. Ask a question and get answers.
Ask a question and get answers from other users.