World map of Osteogenesis Imperfecta


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Osteogenesis Imperfecta stories


FILHOS COM OSSOS DE VIDRO, MÃES COM NERVOS DE AÇO!


Quando meu Matheus nasceu a gente morava em uma cidade minúscula do interior do Paraná. Ele já nasceu com muitas fraturas, mas os médicos não viram nenhuma delas, até que no dia em que comple...

Views: 769 Jan 23, 2016, 9:29 PM by Cida Santos

DAN THE MAN


 I'm in that 7th grade. I live in Las Vegas, Nevada USA. I am 3'2" and 36 lbs. I use a wheelchair and keep active.

Views: 606 Feb 4, 2016, 5:55 PM by Dan The Man

MAPS


I've got Osteogenesis Imperfecta, and my son has Pulmonary Atresia with Intact Ventricular Septum.  Figured I'd put that here since there's no option to add a family member or anything like that.

Views: 596 Feb 5, 2016, 11:52 PM by Katie

YAREN OI TYPE UNKNOWN


Well our oi story began on 22 th week of my wife's pregnancy.doctors have realised some bowing on both femurs of our baby girl and advised to visit an expert.lucky us that we met with Prof. Dr.Atil Yüksel.

Views: 560 Feb 6, 2016, 4:50 AM by Kahraman

ALINEMENT


I was diagnosed at a very young age. I have 3 children, one with OI type 1 and 4 grand babies and one of them has OI as well. It's been a long road but one I wouldn't have changed. My Dad pasted it on to me and my siblings. My Mom has been a wonderfu...

Views: 557 Feb 5, 2016, 10:55 PM by Charlotte

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