Living with Phyllodes tumor. How to live with Phyllodes tumor?

Can you be happy living with Phyllodes tumor? What do you have to do to be happy with Phyllodes tumor? Living with Phyllodes tumor can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Phyllodes tumor


Living with Phyllodes Tumor


Receiving a diagnosis of Phyllodes tumor can be overwhelming and challenging. This rare type of breast tumor requires careful management and support. While every individual's experience may differ, here are some essential aspects to consider when living with Phyllodes tumor:



1. Seek Expert Medical Advice


Upon diagnosis, it is crucial to consult with a medical professional who specializes in Phyllodes tumors. They can provide you with accurate information, discuss treatment options, and guide you through the journey. Do not hesitate to ask questions and seek second opinions to ensure you have a comprehensive understanding of your condition.



2. Build a Support Network


Living with Phyllodes tumor can be emotionally and physically challenging. It is essential to surround yourself with a strong support network of family, friends, and support groups. Sharing your feelings and experiences with others who have faced similar situations can provide comfort, understanding, and valuable insights.



3. Educate Yourself


Knowledge is power when it comes to managing Phyllodes tumor. Take the time to educate yourself about the condition, its symptoms, treatment options, and potential side effects. This will enable you to make informed decisions about your healthcare and actively participate in discussions with your medical team.



4. Follow a Treatment Plan


Working closely with your healthcare team, develop a personalized treatment plan that suits your specific situation. Treatment options for Phyllodes tumor may include surgery, radiation therapy, and in some cases, chemotherapy. Adhering to your treatment plan and attending regular follow-up appointments is crucial for monitoring your progress and managing any potential complications.



5. Prioritize Self-Care


Living with Phyllodes tumor requires paying attention to your physical and emotional well-being. Make self-care a priority by adopting healthy lifestyle habits such as regular exercise, balanced nutrition, and sufficient rest. Engaging in activities you enjoy, practicing relaxation techniques, and seeking counseling or therapy can also help manage stress and improve overall quality of life.



6. Stay Positive and Seek Emotional Support


Maintaining a positive mindset can be challenging, but it plays a significant role in coping with Phyllodes tumor. Surround yourself with positivity, engage in activities that bring you joy, and seek emotional support when needed. Professional counseling or joining support groups can provide a safe space to express your emotions, fears, and concerns.



7. Monitor Your Health


Regular monitoring of your health is essential when living with Phyllodes tumor. Stay vigilant and report any changes or new symptoms to your healthcare team promptly. This allows for early detection of any potential recurrence or complications, ensuring timely intervention.



8. Stay Informed About Research and Clinical Trials


Stay updated on the latest research and advancements in Phyllodes tumor treatment. Clinical trials may offer alternative options and access to innovative therapies. Discuss with your medical team whether participating in a clinical trial is a suitable choice for you.



9. Embrace Emotional Resilience


Living with Phyllodes tumor requires emotional resilience. Accept that there will be good and bad days, and allow yourself to experience a range of emotions. Cultivate coping mechanisms that work for you, such as mindfulness, journaling, or engaging in creative outlets.



10. Advocate for Yourself


Be your own advocate throughout your Phyllodes tumor journey. Speak up, ask questions, and actively participate in your healthcare decisions. Remember that you have the right to be informed and involved in all aspects of your treatment and care.



Living with Phyllodes tumor can be challenging, but with the right support, knowledge, and mindset, it is possible to navigate this journey with resilience and hope.


by Diseasemaps

zie de website www.phyllodestumor.org

8/29/18 by Phyllodesfoundation.com

You can be as happy as you permit yourself to be. There will always be a certain anxiety as from any cancer but if you do your homework and find a doctor that knows Phyllodes and you trust you can rest a little easier.

4/28/17 by Mary Jane Brother 1100

You can be happy, you have to not live in fear of recurrence yet stay vigilant.

5/9/17 by Rhonda 1010

Yes! Utilize every treatment and a surgery modern medicine has yo offer.

10/7/17 by Wendy Nelson 1500

Have it surgically removed with clear margins. Do not "wait and see " if you have a biopsy and are told that it is benign.

11/12/17 by Paula Sheils 1200

Always do your regular check ups at the Dr. Be also vigilant and check your own breast. If anything out of ordinary is detect in between the Dr check ups, please see your Dr

11/26/17 by Sabrina 2500

Try to be kind to yourself, gain an understanding of the condition and this will allow for self education and to answer others. Try for a positive outlook, it will help.

5/6/18 by Marie 2500

Continue to be breast aware, do research, get any lumps checked immediately

11/11/18 by 3050

You dont keep it in!! Excision the soonest. Then forget about it, just scan every 6 months. If malign. Treatment recommended, and keep moral up

6/3/19 by Nathalie 1600

It is not advisable to let PT be in your body as it may grow fast

8/24/19 by Raji Bedi 1500

As most PT are misdiagnosed Fibroadenomas, prompt treatment is vital. Left alone they will continue to grow in size till they break the skin. Malignant tumours will kill you if left untreated.

8/10/20 by Simone Lovett 2550

If you have benign phyllodes you should be fine. If you have malignant phyllodes it is natural to worry about it spreading but try not to look at too much on the Internet. It will fuel your anxiety. Join the phyllodes support group on Facebook as it is very informative but bear in mind that the more severe cases remain active. Many post once and then have no further problems.

9/26/20 by Lucy 3570

Top questions

What is the life expectancy of someone with Phyllodes tumor?

Celebrities with Phyllodes tumor

Is Phyllodes tumor hereditary?

Is Phyllodes tumor contagious?

ICD10 code of Phyllodes tumor and ICD9 code

View more questions of Phyllodes tumor

World map of Phyllodes tumor


Find people with Phyllodes tumor through the map. Connect with them and share experiences. Join the Phyllodes tumor community.

There are 799 people in the map. View Map of Phyllodes tumor