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Prader-Willi Syndrome stories
I am speaking on behalf of my son Bill. He is delightful and fun, but sufferes from the hunger and anxiety that food and unscheduled events can bring. He has a wonderful sense of humor (about everything except food). He likes to part...
Views: 764 Dec 14, 2015, 11:46 PM by Bill
Rhianna was diagnosed with Prader-Willi at a few weeks old.
It would be wonderful to meet another child with the same syndrome who could become a friend to Rhianna and who lives within travelling distance of Guernsey.
Views: 746 Feb 23, 2016, 3:33 PM by Sue
Born Oct 13, 2014. Diagnosed around 3 weeks old through genetic blood tests. Deletion type. NG tube used for feedings, pulse oxygen monitor, and supplemental oxygen at night. Growth hormone. Glasses. Ankle braces/ supports.
Now over 1 year old, can ...
Views: 708 Dec 14, 2015, 1:49 AM by Ariah
Find my story here
Views: 689 Dec 13, 2015, 7:25 AM by ASTON
Başak, was born in Milas on 18.03.2010. Symptoms of PWS from birth. In the same year, diagnosed with PWS. Başak, lived experiences of each child with PWS. Even apart from these, PWS in the literature for non-kidney failure is experiencing. PWS is c...
Views: 574 Dec 13, 2015, 5:02 PM by Başak Balıca
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