Thank you for sharing your's and Rod's story, Ann x
Ann,
I regularly work with clients and carers of those with PSP. After learning of PSP, I've created community programs to benefit those with this condition. Your husband was truly fortunate to have someone like you in his life. It sounds like you gave him the highest quality of life available. I too at times suffer from a poorly understood condition and would love to have an understanding ear. I am very sorry to hear you lost the love of your life and hope you never question the care you were able to give him. Thank you for sharing your story.
Ann, My husband has PSP for about 18 months & he is still ambulatory but falls & his eyesight is getting really bad. Your story was beautiful & I hope I can be strong enough to lift my hubby into a wheelchair because I too want to care for him at home. He can eat but he coughs & I now things are starting with his swallowing. He sleeps 15 to 18 hrs a day but not depressed. As I read your story I realize how lucky we were to have gotten a diagnosis quickly. So I was able to try & catch him when he fell or break his falls. He was never seriouly injured just bumps & bruises. e takes Sinemet which really helps his gait in curbs the falls. Your story was remarkable. This is such a terrible illness & rare.
I hate wathing the love of my life deteriate daily in front of my eyes. Thanks for inspiration & sorry for your loss
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