20 Years of RP

14 Years of Drs scratching their heads then diagnosed. New rheumatologist 3 to be exact scratching their heads not knowing how to treat the disease. I try to educate them and they take it as an insult to their intelligence. meanwhile the disease is progressing and I can't find anyone here locally that knows how to treat it. On a very fixed income so my options are very limited as far as traveling to a doctor that's familiar with the disease. I have several other diseases that fall under relapsing polychondritis. When will Physicians learn that they need to listen to their patients?¿