My RP
I was diagnosed with autosomal dominant Retinitis Pigmentosa when I was 14. I inherited it from my dad. I was declared legally blind (less than 20 degrees of vision) when I was 20. I am currently 28, and I have 5 degrees left. I also have cystoid macular edema, cataracts, and common astigmatism. I hid my disease until I was approximately 24; I did not want to be judged or labeled the blind girl, or have to answer questions, particularly about being blind and wearing glasses. I am now very open about it, and actually wish more people would ask questions, rather than assuming anything. I try to spread awareness about RP, particularly the concept of being partially sighted, as so many people don't understand that blindness falls on a spectrum. I started using my cane when alone in public last year, which is sometimes still hard for me, but I have learned what an amazing tool it can be. I am active in many online RP support groups, and am happy to be able to help others i figure out how to cope with their condition. I hope I can help others, whether they need to talk, rant, cry, or just have questions.
Find people with Retinitis pigmentosa through the map. Connect with them and share experiences. Join the Retinitis pigmentosa community.