How do I know if I have Rett Syndrome?

What signs or symptoms may make you suspect you may have Rett Syndrome. People who have experience in Rett Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

My daughter first started regressing at about 1 year of age. She started losing purposeful use of her hands. Then she lost the ability to speak. The thing we noticed the most was the difference in her gait.

9/11/17 by Maria 2000

Top questions

What is the life expectancy of someone with Rett Syndrome?

Celebrities with Rett Syndrome

Is Rett Syndrome hereditary?

Is Rett Syndrome contagious?

Is there any natural treatment for Rett Syndrome?

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World map of Rett Syndrome


Find people with Rett Syndrome through the map. Connect with them and share experiences. Join the Rett Syndrome community.

There are 170 people in the map. View Map of Rett Syndrome