Rubinstein-Taybi Syndrome
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Rubinstein-Taybi Syndrome stories
My name is Raelyn Hollins. I am 2 years old. When I was born the doctors thought that I had a seizure, so I was sent to a bigger hospital to be monitored in the NICU. Many tests were performed on me. A geneticist came up with the diagnosis of Rubinst...
Savannah was born in 2003 our only daughter had finally arrived. We already had two very happy and healthy boys 9 and 3 years older than our daughter. Savannah developped slowly was never a huge eater and was a few montlhs behind in her goals t...
Views: 627 Mar 31, 2017, 12:23 AM by Rachelle
I found out September of 2015 that my son has Rubenstein Taybi syndrome. He's 4 now, & I hope to connect with others. I love to know how families can help their kids with this condition. He's up to 3 words & 3 syllables. We haven't been able ...
Views: 583 May 21, 2016, 9:34 PM by Luz
I gave birth to a baby boy 14 years ago. A few hours after birth I was informed that something was severely wrong with his heart( DORV, VSD, Bicuspid aortic valve, 80% blockage of the Aorta)- Complex Congenital Heart Defect.. Rare... 20% success rate...
Views: 479 Mar 30, 2017, 2:07 PM by Magan
Was adopted with RTS. Lots of surgeries.lots of doctors. Lots of love.
Views: 409 Mar 30, 2017, 7:33 PM by Tabitha
Rubinstein-Taybi Syndrome forum
Where are the areas in the world where Takayasu is located?
Views: 384 Dec 26, 2015, 9:08 PM by Wanda
Views: 358 Dec 26, 2015, 9:07 PM by Wanda
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