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Rubinstein-Taybi Syndrome
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Rubinstein-Taybi Syndrome
Advice
Advice of Rubinstein-Taybi Syndrome
A loving family
by Gemma
Annabel rolled and sat by herself at 11months.
by Annabel
EP300 gene so not detected in routine genetic testing
by Daniel
support of family and friends
by Raelyn Hope Hollins
My son is 4.
by Nazila
Connecting with other RTS families
by Jeff
Kinaret/Anakinra injections daily to treat Chronic Inflammatory Condition.
by Ted Kelts
With time things get "easier"
by Magan
Watching your baby can read dvds
by Luz
Spinal fusion
by Lspinelli
Good doctors
by Tabitha
Savannah has drive and determination and I think that keeps us as parents driven.
by Rachelle
Speech language therapy
by Katy Schremp-Reeves
Support and love from others
by Adan
Support from family and friends
by LaShara
Gluten dairy sugar free diet plus natural supplements improved my health.
by Vittorio Sconocchini Abdala
Lots of positive support from the special needs class at school,Riding for the disabled & being accepted in the community
by Gemma
Annabel crawled, pull herself up and walking around things at 25/26months.
by Annabel
physical therapy
by Raelyn Hope Hollins
Tonsillectomy to enlarge airway
by Jeff
Learning to type with Facilitated Communication so I can communicate.
by Ted Kelts
Finding a great support group is very important
by Magan
Speech therapy from school
by Luz
My family
by Lspinelli
Family
by Tabitha
Savannah's loving nature and great sense of humor helps us to move forward each day.
by Rachelle
Occupational therapy
by Katy Schremp-Reeves
ABA regional center eye drops.
by Adan
Participating in competitive cheer
by LaShara
Weetbix everyday, watermelon, food food food healthy fruit, big appetite and drinking water conpletly cured my constipation, now I'm regular n no more lactulose
by Gemma
support groups on facebook
by Raelyn Hope Hollins
Surgery to straighten thumbs
by Jeff
Having a consistent schedule.
by Ted Kelts
Never give up hope for the future
by Magan
Connecting with other rts families
by Luz
Video games
by Lspinelli
Therapy
by Tabitha
Proloqu2go has made understanding Savannah much easier lessening her frustration with us.
by Rachelle
Physical therapy
by Katy Schremp-Reeves
A healthy diet. Excercise
by Adan
Finding the right doctor
by LaShara