Sarcoidosis

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Mijn verhaal

In 2006 is het begonnen met een oogontsteking. Later is dat vergerget en na 2 jaar kreeg ik een uitval aan de rechterkant van mijn gezicht. 2 weken ziekenhuis en Mijn oogzenuwen waren beide lek en de ontstekingen schoten door mijn hoofd, De pijn ging van zenuw naar zenuw. uiteindelijk bleek dat uit de longfoto kwam dat ze longblaasjes wat vergrootwaren. Dus 99%zekerheid Sarcoidose. Ze nemen geen stukje van de hersenen voor de 100%. Zou ik ook niet gewild hebben. Heb ruim 3 jaar prednison in de maximale dossis geslikt met hierbij MTX. Verschrikkelijk. Dat nooit meer.... Nu bijna 10 jaar later is het terug op de ogen

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