When???
I was diagnosed with Sarcoid in 1998. After three lung biopys my doctors determined I have had Sarcoid since I was a toddler - 1963! I was sick a lot as a child - especially with bronchitias. Now I know why.
I had to take 80mgs daily of Prednisone for years to 'burn' the Sarcoid on my lungs. After two years it came back and I started all over again! I am 5' and ended weighing 320 pounds! Now I am on 5 mgs of Prednisone and weigh 190 lbs.
The Prednisone has destroyed my body. I have had a lot of health problems - especially arthritis and have two surgeries to fix my left thumb bone on bone and an 8" rod in my right leg - bone on bone - no more ankle.
I am not on oxygen, but I only have about 30% use of my lungs. I can not bend over without feeling faint and I have fainted some! I have developed a lot of GI problems and the biggest one is gastroparesis - causes lots of pain and other fun things! I use two inhalers, nublizer when needed and about 15 RX and 12 OTC meds.
I have an excellent group of compassionate and kind doctors.
I am very blessed with my family who are very supportive and loving. I am from VA and was living in CA when I was diagnosed. I had to move back home because I needed more help than my friends could give. My friends!!!! I have not seen them in over 10 years and they still call me and write me. I also have a rich spiritual life. And easy hobbies like reading!!!
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