Newly diagnosed
I believe I’ve had this condition most of my adult life, but was misdiagnosed. I was recently diagnosed after a biopsy in June 2019. Like most, I was initially told it was cancer and I was relieved to find out it was Sarcoidosis instead. Now, I’m not sure if I feel the same. Doctors do not seem to know how to treat this disease. I feel like I’m steadily getting worse because the disease has caused pulmonary fibrosis and the doctors are not aggressive in treating the illness. It’s very depressing and lonely to have this disease.
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