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Scleroderma stories
In 1996 I was diagnosed with Systemic Diffuse Scleroderma. I had never heard of it, couldn't spell or pronounce it. Fast forward 20 years and I can say that Scleroderma has been a blessing in my life, not a curse.
In 1996 I almost immediately was ho...
Views: 1157 by Helene
I was officaily diagnosed in 2013 at age 52.
My dermatoligist ran blood tests becaause I was complaining of the apperance of several red spots (telangiectasias) and Raynauds symptoms.
She came back with the news that I have CREST syndrome, a c...
Views: 956 by Laurie
Hello, my name is Claire. I was diagnosed with extensive Localized Cutaneous Scleroderma in December of 2012 at the age of 4.5 years.
Views: 712 by Claire
It took me several years before I got diagnosed. I even had one doctor tell me that it was all in my head. For years I always had an excuse for why feeling the way that I was, stress or taking on to much. Then finally I saw the correct doctor a...
Views: 633 Jun 22, 2016, 9:13 AM by Deb
I was dianosed in the late 1950s with En Coup De Sabre Localized Scleroderma when I was around 5-7 years old.
Views: 549 Jan 17, 2016, 6:48 PM by Barbara Burke
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