Sotos Syndrome

World map of Sotos Syndrome

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What is the life expectancy of someone with Sotos Syndrome?

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Is Sotos Syndrome hereditary?

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Sotos Syndrome stories

AMELIA'S STORY

Hi my name is Brooke, My daughter Amelia was dignosed with sotos syndrome when she was 6months old, it has been a bumpy ride. She is getting there with the walking and talking and other problems she has with the help with pyshio and speech ther...

Views: 782 Feb 29, 2016, 5:13 PM by amelia

I AM LUCY'S MOTHER, LESLEY AND THIS IS HER STORY.

Hi! I am Lesley and my daughter Lucy was diagnosed with Soto's syndrome when she was 7 months old. She was born 4 weeks early and was 7 lbs 8 Oz and had to stay in the nicu for almost 2 weeks. She failed the test that they use to test the babies musc...

Views: 740 Feb 3, 2016, 10:05 PM by Lucy

BOTH MOM AND DAUGHTER HAVE SOTOS

Views: 693 Sep 26, 2017, 4:41 PM by Katie and Dana both

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