Stories of Sotos Syndrome

Sotos Syndrome stories
Hi my name is Brooke, My daughter Amelia was dignosed with sotos syndrome when she was 6months old, it has been a bumpy ride. She is getting there with the walking and talking and other problems she has with the help with pyshio and speech ther...
Sotos Syndrome stories
Hi! I am Lesley and my daughter Lucy was diagnosed with Soto's syndrome when she was 7 months old. She was born 4 weeks early and was 7 lbs 8 Oz and had to stay in the nicu for almost 2 weeks. She failed the test that they use to test the babies musc...

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Statistics of Sotos Syndrome

2 people with Sotos Syndrome have taken the SF36 survey. Mean of Sotos Syndrome is 1355 points (38 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Sotos Syndrome

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