Living with the beast...

I was diagnosed in 2007 during my pregnancy with my son. It was a horrible pregnancy of pain and loss of feeling below the waste. I finally had an emergency c-section and spinal cord surgery 2 weeks later. They told me I'd be back to work in 2 weeks and they would "fix" me. Well long story short I woke up from surgery with no feeling from the neck down and they told my family I'd never walk again. I am a fighter so I fought and fought and two years later I could finally drive again. Now in 2015 they determined my shunt is clogged and I'm back to square one. Just got excepted into the syringomyelia study in bethesda md and I'm super excited to get some insight from someone who actually knows about this crazy beast in my spinal cord. So early June 2016 I will have my first apt there and I can't wait. I'd love to help or give any insight to anyone who needs it. Don't hesitate to contact me. Alana1139@comcast.net