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Advice of Syringomyelia
by pauline arkley
My mum and dog are my rock
Lots of rest
by Annabelle Neale
Excellent doctors who listen and always attempt to help.
by Sheila Rainey
Know your limits and get plenty of rest.
by Michael Shepich
Chiari decompression surgery
Finally getting onto insurance is helping me begin to get more answers.
by Roxanne Hosford-Ragland
It is my granddaughter that has Chiari Malformation and Syringomyelia ( she has had decompression surgery ) but some symptoms have returned as well as new issues.
The patch i use has been better with the pain. It helps when i feel less pain.
by Christina Evans
by Caroline Briggs
Staying as active as possible
Connecting with people who suffer with SM on FB through different Forums. I have some great friends that understand what I am going through.
by K. Meinert
Water. whether taking a bath or swimming it helps with pain
by Misty Villa
My fur babies are why I get up every day
by richard newton
Excercise in the beach
My relationship with God
My medication regime
by Lori Muhleisen
C6-C7 lamenectomy with Syringo subarachnoid shunt surgery
Voltaren Gel topical Cream
by Regina Woods
Listen to your body
by Laura jerles
Increasing my gabapentin plus propananol for tremors have helped. The abdominal spasms are less.
by Deborah Wylie
memory foam seat pad
Nearly pain free from my Plexus products
by Michelle Green
Close family and friends whose love and support helps so much. I'd be lost without them.
God and prayer
I now use my journey with rare disease to advocate for others!
by Beth Nguyen
Laying down takes the pressure off the spinal cord and calms the nerves
Rest, sleeping with wedge pillow and roll under knees
Fentanyl gel patches(Activas brand), Oxycondone, Promethazine, VALUIM, Topamax, hydroxizine, Soma, Adderall, Norflex, Dilaudid
Keep busy - try not to dwell on it
by Hannah Sexton
by William Stallings
Lyrica has helped the pain.
Taking Elixinol CBD rich hemp oil for the last 3 months has taken away all my pain
Chiropractic- muscle (no cracking)
Lyrica & Cymbalta
Simple yoga every morning really helped with back pain
by Emma Wilford
My daughter is my will to fight this. She is my everything.
So far nothing