Help us to help more people
  2. Syringomyelia
  3. Advice
Understanding
by pauline arkley
My mum and dog are my rock
by [email protected]
Lots of rest
by Annabelle Neale
UCLA neurosurgery
by Eric
Excellent doctors who listen and always attempt to help.
by Sheila Rainey
Lyrica
by JEAN
Know your limits and get plenty of rest.
by Michael Shepich
Chiari decompression surgery
by Anonymous
Finally getting onto insurance is helping me begin to get more answers.
by Roxanne Hosford-Ragland
It is my granddaughter that has Chiari Malformation and Syringomyelia ( she has had decompression surgery ) but some symptoms have returned as well as new issues.
by Kathleen
The patch i use has been better with the pain. It helps when i feel less pain.
by Rebecca
Bikram Yoga
by Christina Evans
Rest
by Caroline Briggs
Staying as active as possible
by Steph
Connecting with people who suffer with SM on FB through different Forums. I have some great friends that understand what I am going through.
by K. Meinert
Water. whether taking a bath or swimming it helps with pain
by Misty Villa
My fur babies are why I get up every day
by Austyn
Working
by Valerie
Rest
by Rhonda
Keep Positive
by richard newton
Excercise in the beach
by Martha
My relationship with God
by Pamela
Massage
by Sherry
My medication regime
by Heather
Kratom
by Lori Muhleisen
C6-C7 lamenectomy with Syringo subarachnoid shunt surgery
by SarahW
Voltaren Gel topical Cream
by Regina Woods
Listen to your body
by Laura jerles
Increasing my gabapentin plus propananol for tremors have helped. The abdominal spasms are less.
by Deborah Wylie
memory foam seat pad
by Michael
Nearly pain free from my Plexus products
by Michelle Green
Surgery
by
Close family and friends whose love and support helps so much. I'd be lost without them.
by Kerry
God and prayer
by Tadd
I now use my journey with rare disease to advocate for others!
by Beth Nguyen
Laying down takes the pressure off the spinal cord and calms the nerves
by Alana
Rest, sleeping with wedge pillow and roll under knees
by Laura
Fentanyl gel patches(Activas brand), Oxycondone, Promethazine, VALUIM, Topamax, hydroxizine, Soma, Adderall, Norflex, Dilaudid
by Brooke
Keep busy - try not to dwell on it
by Hannah Sexton
Working out
by William Stallings
Meditation
by Niek
Lyrica has helped the pain.
by Craig
Positive people
by Lori
Taking Elixinol CBD rich hemp oil for the last 3 months has taken away all my pain
by Morag
Chiropractic- muscle (no cracking)
by Beth
Lyrica & Cymbalta
by Magdalena
Simple yoga every morning really helped with back pain
by Emma Wilford
Pain management
by Emma
My daughter is my will to fight this. She is my everything.
by Stacy
So far nothing
by Amanda