Advice of Syringomyelia

Support from family and friends

by Annabelle Neale

Baclofen and Gabapentin

by Eric

Shunt placement in May, 1994 (actually a pediatric feeding tube, not a shunt).

by Sheila Rainey

Cymbalta

by JEAN

Water therapy i.e. walking in a pool

by Michael Shepich

Oxygen

by Anonymous

Those who stay by my side have made me feel better.

by Roxanne Hosford-Ragland

My little granddaughter and I both continue the journey and fight for awareness of these diseases as well as someday a cure !

by Kathleen

Keeping busy with crafts and other things.

by Rebecca

Cannabis Oil

by Christina Evans

my husband is so committed to helping me

by Caroline Briggs

Loss of weight to relieve the back from excessive baggage

by Steph

Prednisone each time I am prescribed it for another ailment. It helps me with my SM pain so much I feel halfway human.

by K. Meinert

Having a loving supportive boyfriend.

by Misty Villa

Tuesdays and Thursdays for physical therapy

by Austyn

Staying Busy

by Valerie

Medication

by Rhonda

Listen to your body

by richard newton

Positive mind

by Martha

Staying Positive

by Pamela

Essential oils lotion called pain pain go away

by Heather

massage

by Lori Muhleisen

Very supportive husband and daughter

by SarahW

Hot Baths

by Regina Woods

Family

by Laura jerles

Having great family support helps on my mental health dealing with this for so long.

by Deborah Wylie

med,s

by Michael

Healthier lifestyle

by Michelle Green

shunt

by

First doing things you enjoy for me it's gaming, reading, films, TV and art. It helps keep my mind busy especially as I'm not very mobile.

by Kerry

meditation

by Tadd

My family loves me and I now have a family of those who share my same diagnosis with Worldwide Syringomyelia & Chiari Task Force.

by Beth Nguyen

Someone lightly, very lightly rubbing my back

by Alana

I wish there were more things I could say but haven't really found anything else that helps

by Laura

Massages and Tanning Beds

by Brooke

Regular remedial massage

by Hannah Sexton

Staying Active

by William Stallings

Medication

by Niek

Apriciate every day

by Lori

My husband Dennis is a huge support in every way

by Morag

Controlling anxiety

by Beth

Dr Christian Simonsberg, Dr Michael Rymond

by Magdalena

Taking Gabapentin for nerve pain helped me live normally again

by Emma Wilford

Keep a symptoms journal

by Emma

The proper combination of meds and infusions.

by Stacy

Wear face coverings in windy, cold, or environments with flying particulates. (Trigeminal Neuralgia)

by Fred

My hot pack

by Linda

having good Dr.s who understand my disease of Syringomyelia ..

by Mary

Find medication that works for you

by Cindy

Keep moving. Singing!

by Phillip osullivan