Help us to help more people
  2. Syringomyelia
  3. Advice
I truly wish I could say that we have had alot of support from family, friends or the public ( even her doctors ) but sadly this is just not true !
by Kathleen
Knowing I can do what I can despite the horrible way it seems this disease is going...never lose hope
by Rebecca
Positive attitude
by Steph
Hot tub makes me feel better when it and for about 5 min after getting out.
by K. Meinert
surgrry has improved my symptoms.
by Misty Villa
Family support
by Austyn
Walking
by Valerie
InterStim Implant
by Rhonda
Keep as active as possible
by richard newton
Family support
by Martha
Less stress
by Pamela
Movement
by Heather
rest and heat
by Lori Muhleisen
Rest rest rest
by SarahW
Support and Understanding from Physicians
by Regina Woods
Friends
by Laura jerles
Seeing the right doctor is key to the right treatment for you. This has been the hardest challenge
by Deborah Wylie
and lot,s of rest
by Michael
PRAYER!!!!
by Michelle Green
normal life
by
I have a little jack Russell and she is amazing company. Family and partner work long hrs so she is there with me all day every day. Medication helps but some days it doesn't even touch the pain.
by Kerry
very high pain tolerance
by Tadd
I have a strong faith in God and it is what helps me get through the toughest times.
by Beth Nguyen
Swimming. The weightlessness of water
by Alana
Behavioral Therapy, support groups, and a good primary care provider is a MUST!
by Brooke
Yoga/Pilates/walking/swimming - keep moving
by Hannah Sexton
High Protein Diet
by William Stallings
Talk
by Niek
Find doctors willing to learn
by Lori
Because there is no pain, I have energy and a zest for life
by Morag
Tiger Balm
by Beth
Smärtcentrum CSK, Karlstad
by Magdalena
Massages every other week/once a month
by Emma Wilford
Being a member of support groups
by Emma
My ventilator so I can get the respiratory support I need.
by Stacy
Ibuprofen, imitrex, sunglasses
by Linda
Pain medication & friends who understand why I need them
by Mary
Focus on managing rather than fixing
by Cindy
Understanding the condition, knowledge. Finding interests that I can cope with.
by Phillip osullivan
having good time with my friends and family
by Raija Paananen
Trying to stay positive and somewhat active
by Alana
The sun on my face
by Lynn
A nice dip in a moderate temperature pool.
by Joe Vinson
Much rest
by Jane
Resting
by kimberlyrose0419
Education
by Weeze
Building relationships with people who are supportive
by Breanna
Grupo no zapp
by Lilian
my three wonferful kids
by Tracy Gillikin
Human contact, iam a people person.
by Jasper