> Syringomyelia > Stories

My own hell

For around three years or more I have been looking for answers to why the pain is really bad, I was told DDD can or may make the pain bad, but it seemed too much for even that. I have listed DDD, syringomyelia which is a pisser of one too. It kinda is there and then there is a small place it is barely there, but i guess the neuro doc says it is there and right now I have been diagnosed IIH. I feel liek I have been given a lving death sentence. it is hard to deal with things i was told I was faking and to now deal with it as I tried to before I was believed is like thanks I could have had a better chance when I was talknig to you all before. Listen to me though It is not just about what I have...IT IS abot how we get treated for having something we surely did not ask for. I get quite a boost when I see how people other than me are able to get better. I am real, I cant get fixed unless it is threatening my life, and will then even then. I want a happy life not a life filled with what ifs. Stand your ground you know you best. I will say this I have and I hve found better doctors who may not know the spine but do know the parts it hurts and will do what they can for the synptoms. Fight to have a good life even with it.

World map of Syringomyelia


Find people with Syringomyelia through the map. Connect with them and share experiences. Join the Syringomyelia community.

Related books