Von Williebrands disease type 3 & Borderline personality disorder
Im a 28 year old girl with type 3 von williebrands disease, and borderline personality disorder.
I live in manchester, uk and live with my husband and my 3 cats.
I was diagnosed when I was 13 months old, after excessive bruising, nosebleeds, and bleeding after vaccinations. I used to be on haemate p but I now have been switched onto voncento. I treat myself at home usually, but for major bleeds I consult my haemophilia unit at the Manchester Royal Infirmary. My consultant is Dr Jecko Thachill.
Along with my bleeding disorder, I have problems with mobility because of multiple bleeds Into my joints over the years. The main ones include my ankles, my hips and most severely my back. I am being treated by the spinal unit at salford royal infirmary. Because of my back, im on daily doses of morphine sulphate (oramorph) and pregabalin.
I also have severe mental health problems- them being borderline personality disorder. This includes an eating disorder, self harm, anxiety and depression. I was diagnosed 6 years ago, and have been on quetiapine (seroquel) and venlafaxine (effexor) daily for about 5 years. Before that I tried fluoxetine (prozac) and mirtazapine but they didnt help. I see my consultant psychiatrist dr. Rojo every 6 weeks, and I see my pyschotherapist every week. My CPN visits me twice a week also.
I try to be as active as I can in online suport groups, as at the moment I am unable to work.
I hope that my story helps others to feel less alone, and Im here should anyone want to talk :)
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