Which advice would you give to someone who has just been diagnosed with Anterior Cutaneous Nerve Entrapment Syndrome (ACNES)?

It is good that you want to know more about the syndrome and about what you have diagnosed with. But don't google yoursels 360 degrees around on Google. It won't help you and it won't cure you. Talking about it will help and knowing where to look for the right information will so too. I know that it is a maze on Google on what information is good and what not. So look on NCBI, MedScape, Maxima Medisch Centrum, the facebookpage about ACNES (https://www.facebook.com/acnessyndroom/) there you'll be able to find some information or stories from other people with ACNES that might help you with your diagnosis. And always make a note when you go to the doctor! If you questions ask them. Don't mind that you have already asked them if you want to know something ask again. And listen to the answers of your doctor. Follow their prescriptions. Don't start being your own doctor.

Only do what you can do. Don't push yourself too hard. Always do your research about Dr.s, procedures, and medication you are considering. A therapist can be beneficial in your care. Finding the right Dr. might be a challenge but don't give up! Join support groups to learn more and help others. I find this disease needs more awareness. Spread awareness when you can. Having family members and friends that understand and support you are critical to being in a good space. Remember you are strong and keep trying to get the answers and care you deserve. Pain can get you down a lot. Try meditation and/or other things that can change your mood and that you can engage in positively. It's OK to breakdown as long as you pick yourself back up and keep fighting!