World map of Alagille Syndrome


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Alagille Syndrome stories


BELLAS ALAGILLE SYNDROME


My daughter Isabella was diagnosed with alagille syndrome two years ago. She is six years old and I'm the first grade at school. She has had problems associated with alagille since birth. Her itching has been severe since she was a few days old. It h...

Views: 810 Nov 28, 2015, 4:18 PM by Hailey

DEVOTED MOM


My son suffers from ALGS.  He was diagnosed at 3-yrs of age by an excellent cardiologist at Seattle Children's.   Although he does not have the liver complications, there are numerous other systems that we continue to find are affected as h...

Views: 693 by Kerri

NOTRE HISTOIRE


Ma femme et mais deux enfants on la maladie on.se bas au quotidien ...

Views: 625 by Président association alagille France

HAVING FAITH


My name is Shambhavi Ravishankar and I'm from Bangalore, India. I live in New Delhi. I am 24 years old. Neither of my parents (or anyone in the family that we know of) have ALGS and I have a younger brother who also doesn't have ALGS. I've moved arou...

Views: 453 Feb 5, 2017, 3:36 PM by Shambhavi Ravishankar

ANDREW'S LIVER STORY


Views: 303 Nov 30, 2017, 2:41 AM by Kim

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