Stories of Alagille Syndrome

Alagille Syndrome stories
Ma femme et mais deux enfants on la maladie bas au quotidien ...
Alagille Syndrome stories
My daughter Isabella was diagnosed with alagille syndrome two years ago. She is six years old and I'm the first grade at school. She has had problems associated with alagille since birth. Her itching has been severe since she was a few days old. It h...
Alagille Syndrome stories
My son suffers from ALGS.  He was diagnosed at 3-yrs of age by an excellent cardiologist at Seattle Children's.   Although he does not have the liver complications, there are numerous other systems that we continue to find are affected as h...
Alagille Syndrome stories
My name is Shambhavi Ravishankar and I'm from Bangalore, India. I live in New Delhi. I am 24 years old. Neither of my parents (or anyone in the family that we know of) have ALGS and I have a younger brother who also doesn't have ALGS. I've moved arou...

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Statistics of Alagille Syndrome

2 people with Alagille Syndrome have taken the SF36 survey. Mean of Alagille Syndrome is 2380 points (66 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Alagille Syndrome

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