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Which advice would you give to someone who has just been diagnosed with Alkaptonuria?
See some advice from people with experience in Alkaptonuria to people who have just been diagnosed with Alkaptonuria
Love yoir life the way you want. If your a parent of a child recently diagnosed, please let him or her live a "normal" childhood. They have time and medical advances on their side, especially gene therapy.
Posted Jun 15, 2017 by Shane 2255
Find out all you can about this disease, try to get in touch with other people who have Alkaptonuria, but remember everyone has different pain thresh levels, not everyone is the same with this disease, I didn't know I had it till I was 63, up to that point I did everything, so don't despair. Just because someone in there 30!s is suffering really bad it doesn't mean to say you will.
I say live life as you want to, don't let it make a difference.
I say live life as you want to, don't let it make a difference.
Posted Sep 27, 2017 by Sandra 2000
Translated from spanish
Improve translation
Do not enter in panic, and seek all the help possible, medical, psychological, family to cope with illness in the best way
Posted May 18, 2017 by Marcelah38 2365
