Alternating Hemiplegia Of Childhood
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Alternating Hemiplegia Of Childhood stories
Lexi has had epilepsy since she was 24hrs old and AHC spells since the first week of life. She was diagnosed with the ATP1A3 d801n mutation when she was 3.5yrs old and since then she has been on flunarizine which helped her some. She started solumedr...
Views: 483 Aug 24, 2017, 8:01 PM by Lexi
Some time after Xavier was born the social worker asked if we would foster him until family dynamics could be improved. This turned into a permanent arrangement when Xavier showed symptoms of AHC at six months and began weekly hospital visits. The ey...
I cycle, walk and sell craft items top raise money for research into this disease because my the grand daughter of my oldest friend is a sufferer
Views: 307 May 16, 2017, 5:28 PM by Sue
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