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Amyloidosis stories


MY JOURNEY WITH FAMILIAL AMYLOID POLYNEUROPATHY


Hi , Four years ago , I was diagnosed with Familial Amyloid Polyneuropathy with the mutation Val30Met. In order to halt the progress of the disease I went through a liver transplantation .  I am currently living my life to the maximum by doin...

Views: 1513 by Evgenios Kyriakou

LOST MY HUSBAND TO AL AMYLOIDOSIS


His name was Sidney Caldwell.  I lost him to AL Amyloidosis in November of 2014

Views: 1036 Nov 23, 2015, 9:37 PM by Stacey

DIALYSIS DAY AFTER SURPRISE DIAGNOSIS.


No real help for AA of unknown cause. In my digestive tract now too. 

Views: 973 Nov 23, 2015, 7:32 PM by Erin Kelly

AMYLOIDOSIS


Spring  of 2014 started out with the usual cold. By August/September my proper voice never returned properly and many people thought I had a cold all the time. Went to my GP who sent me to Specialist in my town and from there yo another Speciali...

Views: 926 Nov 30, 2015, 8:56 AM by Deborah

ANNE MARIE CARR'S STORY


Like many people with Amyloidosis, I was dismissed by the medical profession.. The symptoms are variable and vague and they mak other illnesses. However in saying that when one googles them all together viola AMYLOIDOSIS comes up as a likely diagnosi...

Views: 892 by Anne Marie Carr

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