What are the latest advances in Anencephaly?

http://dmpi.duke.edu/anencephaly

Anencephaly Psychological Impact
We conducted a project to examine the
relationship between pregnancy
management choices and psychological
distress following the loss of a baby to
anencephaly. Men and women who
previously lost a baby to anencephaly
completed questionnaires to collect
information about their pregnancy and to
assess levels of grief, post-traumatic stress
and depression.
Individual experiences varied greatly but
several patterns were observed:
 Women experienced more psychological
distress than men.
 Psychological distress tended to decrease
over time.
 Increased participation in organizational
religious activities, such as attending
church, resulted in less grief in both
women and men.
 Pregnancy continuation resulted in less
despair, avoidance and depression in
women (this was not true for men).
 Pregnancy termination early in
pregnancy resulted in less psychological
distress than pregnancy termination
later in pregnancy, especially for men.
Ultimately, coping with the loss of a baby is
deeply personal and will be experienced
differently by each person. We recommend
health care providers discuss the risks and
benefits of all options, but allow the family
to make decisions that are best for them.
Cope H. et al (2015) Pregnancy continuation and
organizational religious activity following prenatal
diagnosis of a lethal fetal defect are associated with
improved psychological outcome. Prenatal Diagnosis,
35: 761-768.