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Angelman Syndrome stories
My daugther Elena was the first diagnosed Angelman Syndrome case in Spain. She was almost 8 y.o. when we received the diagnose and this was devastating for us. We were alone, completely alone until we discovered the Angelman mailing list ...
Views: 4055 Feb 25, 2016, 6:21 AM by Maria
Hi, my name is Carrie. My son William has Angelman Syndrome. William was born at Thirty Four weeks due to my water sac separating from the uterus wall. Aside from having red jaundice at birth he seemed to be completely fine for being slightly prematu...
Views: 4004 Apr 26, 2017, 8:56 PM by Carrie
My son, Mason is 14 yrs old and was diagnosed with Angelman Syndrome at age 2. He's an amazing spirit and absolutely the light of my life.
Views: 3861 Feb 24, 2016, 8:03 PM by Valerie
My son is 14 years old and Del+. We live in North Wales. I have 3 other children. I am chair of ASSERT which is the UK charity supporting families of those with Angelman Syndrome. I have been a trustee of the charity for 10 yrs. Please visit www.ange...
Views: 3822 Feb 25, 2016, 4:33 AM by Rachel & James
"Bella" was born with Angelman Syndrome.
Mom: (ME) Crystal B.
Dad: Bert B.
She was born at UNC Hospital in 2009. Three years later, we went back to that same hospital just to find out our beautiful daughter has Angelman Syndrome and so our...
Views: 3759 Feb 24, 2016, 9:21 PM by Crystal
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