Jaylei's story

My name is Amy and my daughter Jaylei was diagnosed with Angelman Syndrome (UPD) on her 2nd birthday. When she was diagnosed they told us that she would never walk, talk, play, or be a "normal" little girl. She has had some type of therapy ever since she was one. She currently has OT and Speech at home twice a week and during school she has OT, PT, and Speech. Because of the amazing therapist that she has had she can walk, kinda run, has a vocabulary of about 50 words and growing, and is starting to play pretend. My husband and I are beyond blessed to have this amazing little girl in our lives, she has taught us so much about being better people and parents. Yes life is hard and stressful and everyday is a challenge but she is worth fighting for.