I have been having severe abdominal swells since i was 3 years old and mild throat swells and hands and feet swells i was called crazy all my life untill 2014 when i found a great team of doctors and was diagnosed with HAE and EDS and a few other things i have had to quit working but with cinrzye and ruconest and staying home i have some quality of life back( i still swell weekly but not as bad and am in the hosiptal less) and now want to make it my mission to educate others and help others.
I'm glad you want to help and educate others. I'm new to the HAE world. Just got diagnosed a month or so ago, however I've been having symptoms since 2008. I'm on Firazyr and am so greatful there is something (even know its a shot ;) )