How HAE made me a better person

One day I had a terrible HAE abdominal attack. My father told me I had to keep it a secret so I could fulfill my dreams. A year later, when he missed dancing with my sister at her Grad  because he was in hospital, he told me I had to figure this out. He had enough money to send me to be a nurse, but not a doctor. 2 weeks before I started nursing school, my father dies at home, like many of his siblings. 35 years later, I am President of HAE Canada. Received a diagnosis for my daughter 4 years ago. Unfortunately not soon enough to prevent losing my sister. I can honestly say, I am a stronger person,  because I have  survived HAE.

World map of Hereditary Angioedema

---

Find people with Hereditary Angioedema through the map. Connect with them and share experiences. Join the Hereditary Angioedema community.