> Hereditary Angioedema > Stories

HAE in me

I was diagnosed accidentally, after seeing a TV show where the host talked about her HAE in 2014.

My first attack was at 8, when I was mistakenly hospitalized with appendicitis.  The surgery wasn't done, because I felt better in 3 days.  Next remembered attack was at 15, when my hands and feet got swollen.  It happened in US, still I was not diagnozed.

Throghout these years I have already had 3 unnecessary surgeries, diagnosed and treated against migrane, high blood pressure, dyscenesia, cholecistitus, appendicite, gynecological issues, allergy, trombophlebitis etc, all those diagnosis were taken off after diagnosed properly with HAE. 

I still do not have a local doctor, care center, hospital.  Do not have access to medicine.  I am not registred within the medical system here. I get consulted by a doctor from another country, who, God bless her kind heart, had been my number one supporter, just like my family.  

I have HAE type 1, no previous family history.

World map of Hereditary Angioedema


Find people with Hereditary Angioedema through the map. Connect with them and share experiences. Join the Hereditary Angioedema community.