A Hereditary Angioedema story
I have multiple "allergies" that are not allergies and have been diagnosed with chronic idiopathic urticaria. I am also being investigate for porphyria. My daughter has been having monthly swelling and is being investigated for fainting spells and low blood pressure. I have non-typical alleles for F12 and SERPING1 and believe our issues may be related to HE.
Find people with Hereditary Angioedema through the map. Connect with them and share experiences. Join the Hereditary Angioedema community.