Stories of Apert Syndrome

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Apert Syndrome stories
Tengo una niña de 3 años que sufre de síndrome de Apert, para realizar las operaciones que necesita mi hija tengo que trabajar en diversas cosas. Soy madre soltera y nivel económico es muy bajo, pero aun así trato d...
Apert Syndrome stories
Tengo una niña de 3 años que sufre de síndrome de Apert, para realizar las operaciones que necesita mi hija tengo que trabajar en diversas cosas. Soy madre soltera y nivel económico es muy bajo, pero aun así trato d...
Apert Syndrome stories
Hope one day  help aperts mom with their Surgery and support 
Apert Syndrome stories
My daughter born in april 2006 with Apert. No diagnostic antenatal. She got 9 surgery since now:  - craniofacial in 2006 - hands in 2007 (x4) - hands in 2009 (x2) - hands in 2012 - and ORL in 2012 She has 4 fingers to each hands. Surgerys...
Apert Syndrome stories
I am currently working as a Craniofacial Awareness Advocate.   As a high-school and college dropout, I earned college degrees after returning to school - studying Criminal Justice with a minor in Psychology. I hope to continue on a path of stu...

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Statistics of Apert Syndrome

0 people with Apert Syndrome have taken the SF36 survey. Mean of Apert Syndrome is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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