Contact Andrea Taylor, the President/Founder of the nonprofit/patient group for ATS. She has partnered with Arkansas Children's Hospital and UAMS and together they have started the first ATS clinic in the world. In 2017, they started the second clinic in Ghent, Belgium.
ATS should be diagnosed ONLY with genetic testing, looking for variants on the SLC2A10 gene. 2 variants = ATS and 1 variant = carrier.
For more info, contact Andrea.
You can conctact Andrea, go to www.atwistoffate-ATS.com