Autoimmune Hemolytic Anemia / Cold Agglutinin Disease
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Autoimmune Hemolytic Anemia / Cold Agglutinin Disease stories
Our daughter was diagnosed at 2 months with AIHA. Her hemoglobin was 62. She recieved 3 blood transfusions at that point and was placed on steriods. We were unable to taper her completely off of them for 10 months. At 14 month...
Views: 837 Feb 23, 2016, 3:47 PM by Linda Kind
diagnosed at 12, male. AIHA of mixed warm and cold.
Eventually Rituxan 4 rounds was given and had very good response - 2 years on very well.
Diagnosed November 2014 after feeling quite sick for months. Hemoglobin was 62 and platelets low as well. Was originally diagnosed with Evans Syndrome because platelets also being destroyed. Prescribed prednisone 80 mgs and cyclosph...
Views: 766 Dec 16, 2015, 12:21 AM by Alison
I'v got warm AIHA. got in 2007. Done prednisone and rituxin.
Our son, Austin, was diagnosed in December 2016 after inform us of blood in his urine. We were immediately rushed to ER and tested his urine, which was black. It was revealed that his urine contained a large amount of RBC's and his hemoglobin was 93(...
Views: 451 Mar 22, 2017, 8:32 PM by Melissa
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