Stories of Autoimmune Hemolytic Anemia / Cold Agglutinin Disease

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Autoimmune Hemolytic Anemia / Cold Agglutinin Disease stories
diagnosed at 12, male.  AIHA of mixed warm and cold. Eventually Rituxan 4 rounds was given and had very good response - 2 years on very well.
Autoimmune Hemolytic Anemia / Cold Agglutinin Disease stories
I'v got warm AIHA. got in 2007. Done prednisone and rituxin. 
Autoimmune Hemolytic Anemia / Cold Agglutinin Disease stories
Diagnosed November 2014 after feeling quite sick for months.  Hemoglobin was 62 and platelets low as well.  Was originally diagnosed with Evans Syndrome because platelets also being destroyed.  Prescribed prednisone 80 mgs and cyclosph...
Autoimmune Hemolytic Anemia / Cold Agglutinin Disease stories
Our daughter was diagnosed at 2 months with AIHA.  Her hemoglobin was 62.  She recieved 3 blood transfusions at that point and was placed on steriods.  We were unable to taper her completely off of them for 10 months.  At 14 month...
Autoimmune Hemolytic Anemia / Cold Agglutinin Disease stories
Our son, Austin, was diagnosed in December 2016 after inform us of blood in his urine. We were immediately rushed to ER and tested his urine, which was black. It was revealed that his urine contained a large amount of RBC's and his hemoglobin was 93(...

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Statistics of Autoimmune Hemolytic Anemia / Cold Agglutinin Disease

7 people with Autoimmune Hemolytic Anemia / Cold Agglutinin Disease have taken the SF36 survey. Mean of Autoimmune Hemolytic Anemia / Cold Agglutinin Disease is 1653 points (46 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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