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Can people with Axenfeld-Rieger Syndrome work? What kind of work can they perform?
See how people with experience in Axenfeld-Rieger Syndrome give their opinion about whether people with Axenfeld-Rieger Syndrome can work and what kind of jobs are more appropriated for people with Axenfeld-Rieger Syndrome
I'm sure every person is different. I am permanently disabled because I have comorbitities.
Posted Mar 11, 2017 by Missy 1050
Can people with ARS work? While folks with ARS have some things in common; ARS affects each of us differently. There are probably some of us who are unable to work, but I suspect the majority of us can, and do work in all sorts of fields. We all must assess our abilities and disabilities to find suitable work. For instance, given my visual impairment, I should not try to be a truck driver or a surgeon. I don't see where having me guess about percentages in any field is of any value. I have no idea how many of us there are, let alone what we do for a living.
Speaking for myself, I earned a BS, a Masters of Divinity and a Masters of Arts in Christian Education. I would add that I had my first glaucoma surgery during my third year of graduate school. During my early adulthood I worked as a camp counselor, a welder, a groundskeeper and janitor, a pre-school teacher, and finally as a pastor. I served over 30 years as an ordained elder in the United Methodist Church. I believe that coming to terms with my genetic abnormalities made me a better pastor.
There were two extended periods during my service as a pastor when my glaucoma prevented me from being able to work full-time. But, even when I was on medical leaves I was able to work part time. The times when I was unable to work at all came when surgery was needed to bring my glaucoma back under control. The longest was a seven week period in 1989-90 when I had back to back surgeries with follow-up 5-FU injections and laser suture lysis. Fortunately, that treatment has been replaced with better procedures.
I am now retired after many meaningful and satisfying years of work. ARS definitely impacted my work. While it made it more difficult, more time consuming, more tiring, more stressful, and at times even made it impossible; the negative impacts were out-weighed by the ways dealing with ARS made me a better person.
Speaking for myself, I earned a BS, a Masters of Divinity and a Masters of Arts in Christian Education. I would add that I had my first glaucoma surgery during my third year of graduate school. During my early adulthood I worked as a camp counselor, a welder, a groundskeeper and janitor, a pre-school teacher, and finally as a pastor. I served over 30 years as an ordained elder in the United Methodist Church. I believe that coming to terms with my genetic abnormalities made me a better pastor.
There were two extended periods during my service as a pastor when my glaucoma prevented me from being able to work full-time. But, even when I was on medical leaves I was able to work part time. The times when I was unable to work at all came when surgery was needed to bring my glaucoma back under control. The longest was a seven week period in 1989-90 when I had back to back surgeries with follow-up 5-FU injections and laser suture lysis. Fortunately, that treatment has been replaced with better procedures.
I am now retired after many meaningful and satisfying years of work. ARS definitely impacted my work. While it made it more difficult, more time consuming, more tiring, more stressful, and at times even made it impossible; the negative impacts were out-weighed by the ways dealing with ARS made me a better person.
Posted Mar 12, 2017 by Thomas 300
Absolutely, 100%
I'm a research professional and my mom who also has ARS is a teacher.
I'm a research professional and my mom who also has ARS is a teacher.
Posted Mar 16, 2017 by Steve 1000
