Can people with Axenfeld-Rieger Syndrome work? What kind of work can they perform?

See how people with experience in Axenfeld-Rieger Syndrome give their opinion about whether people with Axenfeld-Rieger Syndrome can work and what kind of jobs are more appropriated for people with Axenfeld-Rieger Syndrome

Axenfeld-Rieger Syndrome (ARS) is a rare genetic disorder that affects the development of the eyes, teeth, and other parts of the body. It is characterized by various eye abnormalities, such as malformation of the iris, cornea, and drainage system of the eye. Additionally, individuals with ARS may experience dental abnormalities, facial features changes, and other systemic issues.

When it comes to employment, it is important to note that the impact of ARS can vary significantly from person to person. The severity of the syndrome and the specific symptoms experienced can influence an individual's ability to work and the type of work they can perform.

Many individuals with Axenfeld-Rieger Syndrome are able to work and lead fulfilling professional lives. The key to success lies in understanding their unique needs and making appropriate accommodations in the workplace. It is crucial for employers to create an inclusive environment that supports individuals with disabilities, including those with ARS.

The specific type of work that individuals with ARS can perform depends on several factors, including their overall health, visual acuity, and any additional challenges they may face. Here are some considerations:

Office-based work: Many individuals with ARS can excel in office-based jobs that do not require significant physical exertion. These may include administrative roles, customer service, data entry, accounting, or other desk-oriented tasks. With appropriate accommodations, such as proper lighting and assistive technologies, individuals with ARS can effectively perform these roles.

Computer-related professions: Given the visual nature of ARS, some individuals may find success in computer-related fields. Programming, web development, graphic design, and other digital professions can be suitable options. Adjustments like using larger screens, specialized software, or magnification tools can enhance their productivity.

Consulting and advisory roles: Individuals with ARS who possess specialized knowledge or expertise in a particular field can pursue consulting or advisory roles. These positions often involve providing guidance, analysis, and recommendations to clients or organizations. The focus is on intellectual capabilities rather than physical demands.

Teaching and research: Some individuals with ARS may have a passion for education and research. With appropriate accommodations, they can pursue careers as teachers, professors, or researchers. These roles often involve working in academic institutions, conducting experiments, analyzing data, and sharing knowledge with others.

Entrepreneurship: For individuals with ARS who prefer more flexibility and independence, starting their own business or working as freelancers can be a viable option. This allows them to tailor their work environment and schedule to accommodate their specific needs.

It is important to emphasize that the abilities and limitations of individuals with Axenfeld-Rieger Syndrome can vary greatly. Some individuals may have additional health complications or visual impairments that may impact their career choices. Therefore, it is crucial to assess each person's unique situation and provide appropriate accommodations to ensure their success in the workplace.

Employers should focus on creating an inclusive and accessible work environment for individuals with ARS. This may involve providing appropriate lighting, ergonomic workstations, assistive technologies, and flexibility in work arrangements. Additionally, fostering a supportive and understanding workplace culture can greatly contribute to the success and well-being of employees with ARS.

Diseasemaps

Posted Mar 11, 2017 by Missy 1050

Can people with ARS work? While folks with ARS have some things in common; ARS affects each of us differently. There are probably some of us who are unable to work, but I suspect the majority of us can, and do work in all sorts of fields. We all must assess our abilities and disabilities to find suitable work. For instance, given my visual impairment, I should not try to be a truck driver or a surgeon. I don't see where having me guess about percentages in any field is of any value. I have no idea how many of us there are, let alone what we do for a living.

Speaking for myself, I earned a BS, a Masters of Divinity and a Masters of Arts in Christian Education. I would add that I had my first glaucoma surgery during my third year of graduate school. During my early adulthood I worked as a camp counselor, a welder, a groundskeeper and janitor, a pre-school teacher, and finally as a pastor. I served over 30 years as an ordained elder in the United Methodist Church. I believe that coming to terms with my genetic abnormalities made me a better pastor.

There were two extended periods during my service as a pastor when my glaucoma prevented me from being able to work full-time. But, even when I was on medical leaves I was able to work part time. The times when I was unable to work at all came when surgery was needed to bring my glaucoma back under control. The longest was a seven week period in 1989-90 when I had back to back surgeries with follow-up 5-FU injections and laser suture lysis. Fortunately, that treatment has been replaced with better procedures.

I am now retired after many meaningful and satisfying years of work. ARS definitely impacted my work. While it made it more difficult, more time consuming, more tiring, more stressful, and at times even made it impossible; the negative impacts were out-weighed by the ways dealing with ARS made me a better person.

Posted Mar 12, 2017 by Thomas 300

Absolutely, 100%
I'm a research professional and my mom who also has ARS is a teacher.

Posted Mar 16, 2017 by Steve 1000