> Bardet-Biedl Syndrome > Stories

Hello!

Hello, my name is Bea. Maried with my great and loving husband, Marco. Together we have  three children. Tamara, Bart and Bas. Bart en Bas are twins. Tamara en Bas have BBS. It was great to see this map with all this people with BBS! I could show Tamara and Bas they're not alone!!

World map of Bardet-Biedl Syndrome


Find people with Bardet-Biedl Syndrome through the map. Connect with them and share experiences. Join the Bardet-Biedl Syndrome community.