Help us to help more people
  2. Bardet-Biedl Syndrome
  3. Advice
BBS2
by Jacob
Talking with other people who have experience with BBS
by Claudia
Talking with other people who have experience with BBS
by Claudia
2 daughters with BBS10
by Mary
I raised a daughter with BBS who is now an employed adult, living on her own with some coaching.
by Ruth Dameron
I am mother of BBS girl.
by Bojana
Having understanding from others
by Ryan Forsblade
Humor
by Tamara en Bas Brinkman (30 augustus 2000, male)
Father, Mother and 2 sons
by Bardet-Biedl Netherlands (Bendert & Nienke)
hydroxyclororquinine helps keep the porpyhrins down
by Bob bishop moms madien name wallace
Finding a good team of understanding doctors, that actually truly listen, has made a huge difference.
by Rebecca
family support
by Lydia
Educating the medical world
by Claudia
Educating the medical world
by Claudia
Please register in CRIBBS: Clinical Registry Investigating BBS
by Mary
Get on the Families with Bardet Biedl Syndrome page on Facebook and register with CRIBBS https://cribbs.marshfieldclinic.org/
by Ruth Dameron
She is 10 years old. She is my oldest child. Now I have 3 kids.
by Bojana
Knowing that there are other people like me
by Ryan Forsblade
The oldest has BBS
by Bardet-Biedl Netherlands (Bendert & Nienke)
limit sun exposure to 15 min tops
by Bob bishop moms madien name wallace
Physical Therapy is awesome!
by Rebecca
visits to doctors
by Lydia
Attending the Center for Excellence in Marshfield, WI
by Claudia
Attending the Center for Excellence in Marshfield, WI
by Claudia
BBS-re[email protected]
by Mary
BBS children make progress in many areas with therapies: speech, occupational, physical, nutrition. It's worth the time.
by Ruth Dameron
We love to share experiences.
by Bojana
Knowing the research is being done to hopefully help me one day
by Ryan Forsblade
Bardet-Biedl Foundation Netherlands
by Bardet-Biedl Netherlands (Bendert & Nienke)
load on carbs day before stress and complex sugars and gatorade when in trouble
by Bob bishop moms madien name wallace
A good eye doctor makes life much easier.
by Rebecca
my pet
by Lydia