Stories of Bardet-Biedl Syndrome

Bardet-Biedl Syndrome stories
Hi my name is Ryan, im 14 years old and have BBS1.  My main struggles are my weight and my vision, i also have been diagnosed with Autism and MR.  I got my genetic diagnoisis of BBS about 2 years ago.  I have night blindness and have n...
Bardet-Biedl Syndrome stories
Have a 20 year old son with the syndrome. He is BBS 10, no health issues, mild obesity and his vision is almost all gone. 
Bardet-Biedl Syndrome stories
Please register your BBS loved one in CRIBBS!   [email protected] We have a Center of Excellence for Treatment of BBS, Located at the Marshfield Clinic, contact the director, Dr. Bob Haws, [email protected] for ...
Bardet-Biedl Syndrome stories
Hello, my name is Bea. Maried with my great and loving husband, Marco. Together we have  three children. Tamara, Bart and Bas. Bart en Bas are twins. Tamara en Bas have BBS. It was great to see this map with all this people with BBS! I could sho...
Bardet-Biedl Syndrome stories
Our oldest son has Bardet-Biedl Syndrome (BBS). We are setting up a family foundation in the Netherlands for BBS. Contact us: [email protected]

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Statistics of Bardet-Biedl Syndrome

2 people with Bardet-Biedl Syndrome have taken the SF36 survey. Mean of Bardet-Biedl Syndrome is 2485 points (69 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Bardet-Biedl Syndrome

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