Kristine

Born to a mother of 16 years of age. I was just a bit over 9 pounds. I don't know anything more on my birth as my mother has been gone for 27 years. The memories I have as a child that let me know that I was diffrent from everyone else were my clinic visits measuring just about everything. Also the Ultrasounds. I never really understood what I had until I was 12 (when the name of the syndrome was tossed around with a leg surgery I had to remove exess bone on my left leg). I never looked into the sydrome until I had my first child.

my syptoms are:

Maceroglossia (reduction at 2 years of age)

pits and creases in both ears

Hemihypertrophy (mild)

Was just recently diagnosed with diverteculum of the kidneys. I make stones faster then a rock quarry.