Stories of Beckwith-Wiedemann Syndrome

STORY
Beckwith-Wiedemann Syndrome stories
My daughter Bailee was born November 2014, she has Beckwith-Weidemann Syndrome, Full left sided Hemihypertrophy, and Congenital Junctional Ectopic Tachycardia. 
Beckwith-Wiedemann Syndrome stories
Beckwith-Wiedemann Syndrome stories
I also have fraternal twin sons (b. 2007) who both have BWS. All the of us have had tongue reductions and have gone through tumor screenings. Only one of us currently has issues with hemihypertrophy. Feel free to ask me any questions you might have....
Beckwith-Wiedemann Syndrome stories
My daughter was born with BWS hemi in August 1992. 5 1/2 weeks in NICU due to very low blood sugar. Took out 95% of her pancreas and she has had normal levels ever since. Surgeries later for tonsils/adenoids removal, 2 for lazy eye, stopped bone grow...
Beckwith-Wiedemann Syndrome stories
3 year old daughter with BWS and HI

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Statistics of Beckwith-Wiedemann Syndrome

0 people with Beckwith-Wiedemann Syndrome have taken the SF36 survey. Mean of Beckwith-Wiedemann Syndrome is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Beckwith-Wiedemann Syndrome

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