There are 200 people in the Beckwith-Wiedemann Syndrome map

Beckwith-Wiedemann Syndrome life expectancy

What is the life expectancy of someone with Beckwith-Wiedemann Syndrom...

Is Beckwith-Wiedemann Syndrome contagious?

Is Beckwith-Wiedemann Syndrome contagious?

1 answer
ICD9 and ICD10 codes of Beckwith-Wiedemann Syndrome

ICD10 code of Beckwith-Wiedemann Syndrome and ICD9 code

Is Beckwith-Wiedemann Syndrome hereditary?

Is Beckwith-Wiedemann Syndrome hereditary?

1 answer

Stories of Beckwith-Wiedemann Syndrome

STORY
Beckwith-Wiedemann Syndrome stories
My daughter Bailee was born November 2014, she has Beckwith-Weidemann Syndrome, Full left sided Hemihypertrophy, and Congenital Junctional Ectopic Tachycardia. 
Beckwith-Wiedemann Syndrome stories
My daughter was born with BWS hemi in August 1992. 5 1/2 weeks in NICU due to very low blood sugar. Took out 95% of her pancreas and she has had normal levels ever since. Surgeries later for tonsils/adenoids removal, 2 for lazy eye, stopped bone grow...
Beckwith-Wiedemann Syndrome stories
I also have fraternal twin sons (b. 2007) who both have BWS. All the of us have had tongue reductions and have gone through tumor screenings. Only one of us currently has issues with hemihypertrophy. Feel free to ask me any questions you might have....
Beckwith-Wiedemann Syndrome stories
3 year old daughter with BWS and HI
Beckwith-Wiedemann Syndrome stories
Cason was prenatally diagnosed with an omphalocele containing only bowel and an adrenal hematoma at 18 weeks. We had an amniocentesis done at 20 weeks and it showed no abnormalities. He measured very large for gestational age and always had his tongu...

Tell your story and help others

Tell my story

View more

Beckwith-Wiedemann Syndrome forum

QUESTION

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Beckwith-Wiedemann Syndrome

2 people with Beckwith-Wiedemann Syndrome have taken the SF36 survey. Mean of Beckwith-Wiedemann Syndrome is 2703 points (75 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Share

Beckwith-Wiedemann Syndrome