My doctor Rex Birkmire,who believed me
Knowing other families in the same situation
My mam helped me a lot during my 3 years of war independence against the BWS. Like the nature within a mother she take care of me
My mam helped me a lot during my 3 years of war independence against the BWS. Like the nature within a mother she take care of me
My son is 2 years old and has BWS
Tongue Reduction
Family and friends support
the beckwith support group on facebook
Tongue reduction at 14 months
I was diagnosed when I was three months old
Not sure yet
I'm 6, I do well at school with help.
I hade tongue reduction surgery and cleft palate surgery when I was a baby. I aslo had speech therapy when I was 5. This helped me a lot in having normal social interactions.
I am one of three kids, only one with BWS
BWS Facebook group has been a great help in our voyage!
Diagnosis BWS
The Italian BWS association was a relief
Just a mom trying to raise awareness for her son
Hugs from my mother
It gets easier
14 surgeries due to big organs and a little body
14 surgeries due to big organs and a little body
Trying to forget it by doing something I like, draw, read, watch TV
my family is also very supporting
Quarterly ultrasounds until 8 years old
I had a tongue reduction
Just found out
I love my trampoline, i can ride a bike
I did psychotherapy and CBT for 4 years to help me with my anxiety.
I have 4 children, 3 living, none with BWS
Difficult childhood
Started the website largerthanbws.com as well as a blog
Rest in peace, Dr. Michael Gutman
It doesn't stop joshua from having a normal life
never give up
and all of her doctors that sit and listen and help us with anything we need
Now in perfect health! She just has extra large tonsils/adenoids.
I am a happy bubbly girl!
Will let you know
I have ear tubes to help with pressure issues and with chronic otitis.
Knowing something was different about yourself when your a child and finally understanding when your an adult is like black and white.
Cardio issues dental issues breathing issues scar tissue upsets me
Instagram.com/largerthanbws