Help us to help more people
| View more
View more
Toggle navigation
Beckwith-Wiedemann Syndrome
Home
Map
Forum
Stats
Stories
Top questions
Advice
Diseasemaps
Close
Join the map
Do the survey
Login
en
English
Español
Italiano
Português
Deutsch
Čeština
Polski
Français
العربية
中文
Pусский
日本語
한국어
हिन्दी
Bahasa Melayu
Svenska
Beckwith-Wiedemann Syndrome
Advice
Advice of Beckwith-Wiedemann Syndrome
My doctor Rex Birkmire,who believed me
by Karen
Knowing other families in the same situation
by Sarah mum of joshua 4
My mam helped me a lot during my 3 years of war independence against the BWS. Like the nature within a mother she take care of me
by Mustafa
My mam helped me a lot during my 3 years of war independence against the BWS. Like the nature within a mother she take care of me
by Mustafa
My son is 2 years old and has BWS
by Danielle
Tongue Reduction
by Stanley
Family and friends support
by Daphne
the beckwith support group on facebook
by Tessie
Tongue reduction at 14 months
by Cat
I was diagnosed when I was three months old
by Luna
Not sure yet
by Misti Whitehead
I'm 6, I do well at school with help.
by Alexis
I hade tongue reduction surgery and cleft palate surgery when I was a baby. I aslo had speech therapy when I was 5. This helped me a lot in having normal social interactions.
by Valerie yum
I am one of three kids, only one with BWS
by Kristine
BWS Facebook group has been a great help in our voyage!
by Jagbb1
Diagnosis BWS
by Cody Mitchell
The Italian BWS association was a relief
by Giulia
Just a mom trying to raise awareness for her son
by Larger Than Bws
Parents
by DMSmith
Diagnóstico precoce
by Mayra
Hugs from my mother
by Karen
It gets easier
by Sarah mum of joshua 4
14 surgeries due to big organs and a little body
by Mustafa
14 surgeries due to big organs and a little body
by Mustafa
Trying to forget it by doing something I like, draw, read, watch TV
by Daphne
my family is also very supporting
by Tessie
Quarterly ultrasounds until 8 years old
by Cat
I had a tongue reduction
by Luna
Just found out
by Misti Whitehead
I love my trampoline, i can ride a bike
by Alexis
I did psychotherapy and CBT for 4 years to help me with my anxiety.
by Valerie yum
I have 4 children, 3 living, none with BWS
by Kristine
Difficult childhood
by Cody Mitchell
Started the website largerthanbws.com as well as a blog
by Larger Than Bws
Eating right
by DMSmith
Informações através de outras famílias
by Mayra
Rest in peace, Dr. Michael Gutman
by Karen
It doesn't stop joshua from having a normal life
by Sarah mum of joshua 4
never give up
by Daphne
and all of her doctors that sit and listen and help us with anything we need
by Tessie
Now in perfect health! She just has extra large tonsils/adenoids.
by Cat
I am a happy bubbly girl!
by Luna
Will let you know
by Misti Whitehead
I have ear tubes to help with pressure issues and with chronic otitis.
by Valerie yum
Knowing something was different about yourself when your a child and finally understanding when your an adult is like black and white.
by Kristine
Cardio issues dental issues breathing issues scar tissue upsets me
by Cody Mitchell
Instagram.com/largerthanbws
by Larger Than Bws
Being honest if something is wrong with parents
by DMSmith
Ver meu filho se desenvolvendo forte e feliz!
by Mayra