> Behcet Syndrome > Stories

Life with Behcet's

In 2003 I started coming out in big skin lesions. My GP was at a loss and referred me urgently to Dermatology who diagnosed Discoid Lupus. At first it was treated with steriod creams. It gradully got worse and by early 2005 I was given Dapsone. However after taken it for 8 days I ended up in hospital with a reaction to the drug which affected every part of my body, I was in hospital for 8 days and pumped full of steriods. Lots of tests were done to find out what had casued the servere reaction and it was discovered that I had Bechet's not lupus. 

Lots of different drugs were tried and I finally found my self on thalidomide in 2010 and it has beeen my wonder drug x

World map of Behcet Syndrome


Find people with Behcet Syndrome through the map. Connect with them and share experiences. Join the Behcet Syndrome community.