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A Camurati-Engelmann disease story

Mi condición fue notoria desde los 3 años de edad pero  recien a los 24 años me la diagnosticaron. Antes de esa edad no se sabía que enfermedad yo tenia.

Este es el blog donde cuento más sobre mi experiencia como portadora de esta enfermedad

http://camurati-engelmann.blogspot.cl/

My ondition was notorious from 3 years old but recently at age 24 I was diagnosed. Before that age it was not known what illness I had

This is the blog where I tell more about my experience as a carrier of this disease. It is written in Spanish

 

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