Mi condición fue notoria desde los 3 años de edad pero recien a los 24 años me la diagnosticaron. Antes de esa edad no se sabía que enfermedad yo tenia.
Este es el blog donde cuento más sobre mi experiencia c...
When I was a young child I sufferers from extreme leg pain and shoulder pain . They thought I had arthritis it wasn't untill my second child was 3 we discovered this disease she too has extreme leg, arm , and shoulder pain she also has a extremely se...
I am currently 15 years old and have had Camurati Englemanns Disease all of my life. Luckily we found a very good doctor when I was young so it was a quick diognosis. I have never contacted someone with the same disease I guess this is because it is ...
4 people with Camurati-Engelmann disease have taken the SF36 survey. Mean of Camurati-Engelmann disease is 858 points (24 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey