Story about Camurati-Engelmann disease .

Camurati Englemanns Disease

Feb 7, 2017

By: Poppy


I am currently 15 years old and have had Camurati Englemanns Disease all of my life. Luckily we found a very good doctor when I was young so it was a quick diognosis. I have never contacted someone with the same disease I guess this is because it is so rare but please I really would like to contact someone eith this disease just so I can relate to someone and not feel alone. 

Know someone who should read this story? Share it

1 comment
0

Hi Poppy, I just saw your comment on the DiseaseMap for Camurati Engelmann's Disease and I wanted to invite you to join our facebook group if you haven't already!! Here is the link!!

https://www.facebook.com/groups/CamuratiEngelmannDisease/

Hope to chat with you soon. :)

 

Christina, 36 years old sufferer from Swansea.

Commented 2 years ago Christina 510

Login or register to leave a comment


Camurati-Engelmann disease causes

Which are the causes of Camurati-Engelmann disease?

Camurati-Engelmann disease advice

Which advice would you give to someone who has just been diagnosed wit...

Living with Camurati-Engelmann disease

Living with Camurati-Engelmann disease. How to live with Camurati-Enge...

Couple and Camurati-Engelmann disease

Is it easy to find a partner and/or maintain relationship when you hav...

Camurati-Engelmann disease sports

Is it advisable to do exercise when affected by Camurati-Engelmann dis...

Camurati-Engelmann disease life expectancy

What is the life expectancy of someone with Camurati-Engelmann disease...

Do I have Camurati-Engelmann disease?

How do I know if I have Camurati-Engelmann disease?

Camurati-Engelmann disease diagnosis

How is Camurati-Engelmann disease diagnosed?