Story about Camurati-Engelmann disease .

Camurati Englemanns Disease

Feb 7, 2017

By: Poppy


I am currently 15 years old and have had Camurati Englemanns Disease all of my life. Luckily we found a very good doctor when I was young so it was a quick diognosis. I have never contacted someone with the same disease I guess this is because it is so rare but please I really would like to contact someone eith this disease just so I can relate to someone and not feel alone. 

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Hi Poppy, I just saw your comment on the DiseaseMap for Camurati Engelmann's Disease and I wanted to invite you to join our facebook group if you haven't already!! Here is the link!!

https://www.facebook.com/groups/CamuratiEngelmannDisease/

Hope to chat with you soon. :)

 

Christina, 36 years old sufferer from Swansea.

Commented 8 months ago Christina 510

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